The last couple of weeks we have visited Elijah's pediatrician and cardiologist. The visit with the pediatrician resulted in the doctor recommending Elijah not be placed in day care. He had some tests done while in the NICU that showed him having a weaker immune system than most.
The doctors main concern is if he were to catch the cold/flu from another child it could effect him even worse than most. We have to visit the immunology clinic down at Children's Hospital in Milwaukee and have him retested. We are hoping that since he has grown so has his immune system.
While we are at Children's Hospital we were to schedule a cardiac catheter procedure that they think would help figure out why he has high blood pressure in his heart. After numerous days of Steve playing phone tag with Children's Hospital, they finally got a hold of Steve to inform us that they have scheduled him for heart surgery. Elijah will still have some tests done locally to confirm that surgery is needed, but with scheduling so difficult we went ahead and got him schedule...we can, and hope, that appointment can always get canceled.
The plan is to have it scheduled when he is at least 6 months old which he will be in October. The plan is to go down there on a Thursday to get his labs done and then on Friday they would perform the surgery. The surgery caught us off guard, we know that it was a possibility but we weren't expecting him to have another surgery so soon. If this is going to correct the high blood pressure and allow us to get rid of the oxygen machine than that is what needs to be done.
His kidney's are doing good. The question is as he grows will his kidneys be able to process the increased amount of fluids as he gets bigger. This will be ongoing and something to monitor as he grows.
We also had to visit a Ear, Nose and Throat doctor to have Elijah's hearing retested. They tested him while he was in the hospital and he failed their test in his left ear. They think it may have had something to do with his narrow ear canals. He was retested and failed both. The doctor had suggested we wait and get him retested in 6-8 weeks or we can make the choice of having tubes placed in his ears. These tubes would help drain any fluid that may be in his ear. We are hoping his test was a false positive because he responds to our voices and noises around him... we will just have to wait and see.
My prayers are with you guys!
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